…tinue with meaningful day-to-day activities. This includes breaking down complex tasks into simpler steps or using adaptive equipment to make tasks mor…
Search Results
Communities for Dementia update
…ail Lyn Phillipson lphillip@uow.edu.au. For more information on Dementia-Friendly Communities, please visit the Dementia Australia website….
When it’s not actually dementia
…ree and is available face-to-face or online (depending on your location). For more information visit Dementia Australia’s Thinking Ahead Program. Demen…
Cognitive Stimulation Therapy + Community of Practice
…am that delivers 14 small-group sessions in-person or online. CST sessions are led by trained health professionals or family carers. After completing t…
A healthy diet for hearts and minds
…brain relies on a steady supply of oxygen-rich blood pumped from the heart in order to function properly and stay healthy. Taking good care of your hea…
Dementia and environmental design
…nment is acting upon a recommendation of the Royal Commission into Safety and Quality in Aged Care to improve the design of residential caged care. The…
Introducing the PPA Guide
…ide The PPA Guide is a 42-page comprehensive and practical guide. It provides: an overview of the different variants of PPA, information for families a…
Face Dementia’s General Practice Improvement Program
…osing dementia. Recent research conducted with GPs and practice nurses, as part of the Face Dementia project, identified five key barriers that contrib…
Results show improvement in communication of dementia diagnosis
…ward with Dementia is a 5-country study and co-designed public health campaign. It aimed to improve the communication of dementia diagnosis and post di…
Supporting communication with people living with dementia
…of your body language Non-verbal communication, like body language, gestures, eye contact, and facial expression, are key aspects of communication. App…
Berry good news for brain health
…://doi.org/10.1038/s41598-022-07302-4 Diet Review: The MIND Diet, from the Harvard T.H. Chan School of Public Health https://www.hsph.harvard.edu/nutri…
MyMedicare to benefit older Australians
…care to patients in the community with complex chronic disease who frequently attend hospitals, with the aim of reducing hospital visits. How to regis…
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Launch of Face Dementia project
…iew and a meta-analysis | BMJ Open https://www.alzheimers.org.uk/news/2022-05-16/91-people-affected-dementia-see-clear-benefits-getting-diagnosis…
An ‘exercise snack’?
…participated in this four-week study. “Between 81 and 97 per cent of our participants stuck to their routines over the four weeks and 82 per cent also…
Vote for ‘Enjoying Life with Dementia,’ a film by Bill Yeates
…22nd of August – https://www.focusonability.com.au/FOA/films/3187.html ‘Enjoying life with dementia’ is an ongoing message of hope for Bill himself and…
Dementia Inclusive Ballina Alliance: Future Fit
…ina Alliance (DIBA) is a community-driven initiative dedicated to enriching the lives of those living with dementia. At the event, there will be inform…
New five-day post-diagnostic retreat by Group Homes Australia
…rmation on the five-day post-diagnostic retreat visit https://grouphomes.com.au/5-day-retreat/ or contact the Program Director, Donna Ward on dward@gro…
Donanemab – the third new Alzheimer’s Disease treatment under development
…the tau protein that is associated with the progression of Alzheimer’s disease compared to those with high levels. A major difference in the donanemab…
International experiences of post-diagnostic support
…rmal caregivers with post-diagnostic support: Data from the international COGNISANCE study These results also helped to inform the development of the F…
Influenza and dementia
…ding severe flu in middle-age may protect future brain health. In the study, people who had been hospitalized for flu, with or without pneumonia, were…
Improving the Forward with Dementia website
…lified. The volunteers re-tested the website and found dramatic improvements in the usability of the website. We are so grateful to the volunteers for…
April Falls Prevention
…ltiple medications. Wear comfortable, firm-fitting, flat shoes with fastenings and rubber soles that grip Hazard proof your home – removing trip hazard…
Advance Care Planning week
…r injured, as well as end-of-life care. It also helps to ensure that a person you’ve identified, that you know and trust, is most likely to become your…
Epilepsy and dementia
…ving with familial, early-onset Alzheimer’s disease (under 65 years) a comparatively rare form of Alzheimer’s making up only 1% of all cases, are much…
Rare Diseases Day: Frontotemporal dementia
…. People with behavioural-variant frontal dementia may become apathetic, socially disinhibited or socially unaware. They often have trouble with judgem…
BeConnected webinars and staying safe online
…try, and the lack of face-to-face human connection. And of course, scams. BeConnected webinars The Australian Government Department of Social Services…
Getting organised at home
…me 3.15 Create a dementia-friendly environment 3.17 Use services to support living at home Colin’s story: education, social support and self-care for c…
LGBTIQ+ and dementia
…aining Australia offer a free 3-hour, eLearning Course Caring for LGBTI people with dementia and is suitable for people working in a wide range of care…
Medication update: Lecanemab
…been reported in the top-ranked journal, Science. Researchers suspect the antibody weakened blood vessels in the brain as it attacked the amyloid plaq…
New research supports evaluation of dementia-friendly communities
…Who is undertaking the research? Associate Professor Lyn Phillipson Dementia Collaborative Research Centre Mid-Career Fellow University of Wollongong A…
Communities for dementia research project
…Who is undertaking the research? Associate Professor Lyn Phillipson Dementia Collaborative Research Centre Mid-Career Fellow University of Wollongong A…
Supported Decision Making for people living with dementia
…tions. It provides a step-by-step approach to putting supported decision-making into practice. It was based on the findings from over 100 interviews an…
Tips for coping with the festive season
…sis. Try using our Circle-of-Friends-Worksheet that will help you think through how, what and when to tell family members and friends. Do not hesitate…
Social inclusion for people living with dementia
…ups DAI offer online peer-to-peer support groups, which were the first in the world for people diagnosed with dementia and have been running for almost…
Sleep, wellbeing and dementia: New research
…will be personalised, one-on-one sessions with a psychologist. The other sessions will be offered in groups with other care partners and people living…
Moving forward with new research
…Researchers in the Australian Forward with Dementia Team are actively involved in a range of new research projects to improve diagnosis and post-diagn…
New post-diagnostic support program in the ACT – SPICE
…E) program is a new multi-component intervention which aims to address this need in the Australian Capital Territory (ACT). SPICE is an intensive 12-we…
Nutrition and dementia
…rent Australian Dementia Guidelines recommend that Souvenaid not be used for people with moderate or severe dementia. Read more about this Souvenaid on…
Carers Week 2022
…rward with Dementia also offers downloadable resources to help carers and people with dementia, including a list of Possible questions for your doctor….
Timely Diagnosis Project
…n primary care. The team comprises researchers from seven Australian universities who will work alongside people living with dementia, carers, general…
Dementia Alliance International Peer-to-Peer Support Groups
…el. DAI offer online peer-to-peer support groups, which were the first in the world for people diagnosed with dementia. The groups have been running in…
Older Adult Mental Health Week
…as well as group and one-on-one sessions and can support you to obtain other supports and services. There is no central contact point for the Dementia…
The world of dementia is changing
…are homes are a true home-away-from-home, where residents with dementia have agency in their daily lives. After the pandemic, these models demonstrated…
Meet the Australian Research Team
…rodegenerative Disease Research (JPND), a global research initiative aimed at tackling the challenge of neurodegenerative diseases. JPND aims to increa…
Becoming a dementia advocate – Bill Yeates
…has passed, I am finding new ways of becoming a better advocate. I encourage all people living with dementia to consider becoming an advocate. By shari…
Carer turned dementia advocate – Val Fell
…arch and Education Centre, University of Tasmania in 2017. Get trustworthy, up-to-date information Know about support services Top tips from our expert…
Becoming a dementia advocate – Bobby Redman
…ed in dementia related research. Read the news article: Busting myths to combat stigma Read more about Bobby Redman: Bobby’s story: adjusting, acceptin…
Women’s Health Week
…over 75 years, can have free comprehensive health assessments with their GP and practice nurse. Depending on the outcome of these assessments, your GP…
Speech pathology after a dementia diagnosis
…how to say it), cognitive-communication (e.g., remembering what was said in a conversation, staying focused when reading a story), speech (e.g., slurri…
Support to stay at home following a dementia diagnosis
…he iREADi approach is bio-psycho-social, anticipatory, rehabilitation-focused, and time-limited. It’s provided via a multi-disciplinary Management of D…
Stroke and dementia
…you have high blood pressure, type-2 diabetes, high cholesterol or an irregular heartbeat (atrial fibrillation), see your GP for ways to manage these…
Dental health
…ion also suggest: A three-sided toothbrush when brushing, known as the Surround Three-Sided Toothbrush or the Collis Curve. An electric toothbrush if i…
Libraries and people with dementia
…ment, and much of it for free. For example, you can access: Fiction (including large print) and non-fiction books Audio books and eBooks Music (CDs) Mo…
Gardening and people living with dementia
…esponsibility/sense of accomplishment improved self-esteem and sense of wellbeing. Gardening also lends itself to social interaction where people can m…
Dementia Together Pathways
…have dementia. Go to Post-diagnostic support and dementia care planning. Go to Tools and promotional resources for your clinic. Go to Downloadable reso…
Diabetes and dementia
…Medicare and incur no out-of-pocket expenses. Health assessments help determine your personal risk of diabetes and/or dementia. Depending on the outcom…
Alcohol and dementia
…They can vary from person-to-person but generally include: Impaired ability to learn things Personality changes Problems with memory Difficulty with pr…
Test Page
…Test…
Stay in control of your continence
…1800 33 00 66 between 8am-8pm Monday- Friday There are government subsidies to help with the cost of incontinence products through the Continence Aids…
Dementia awareness in Men’s Health Week
…d support. Delays in help-seeking can compound issues, delay potential early treatment and therapy, and increase individual and family distress. During…
Music and dementia
…te in an international research study about home-based music and reading for people living with dementia and their carers via Homeside. For programs vi…
Art and people living with dementia
…tercolour painting, paint-by-number projects, and craft such as making cards, collage or even community murals. The subject of your art can vary, from…
Exercise right to boost your brain health
…ralian physical activity guidelines also recommend different types of activity each week. Do exercise that you enjoy, you’re much more likely to contin…
The importance of families in dementia diagnosis and support
…gnosis helps everyone to come to terms with it and ultimately ensures the person with dementia gets the support they need. For strategies on this websi…
Dementia and driving
…They usually have an off-road component, where they might check your vision and reaction time, and an on-road practical test. Fitness to Drive assessm…
Celebrating nurses in dementia care
…nd others involved in day-to-day care of the person, nurses provide opportunities to help the person maintain their functional independence, motivating…
Phil’s story: support of a highly trained assistance dog
…ead to the public access test to become licenced. Phil has had Sarah since she was 8 weeks old. At the start, a trainer came three times a week, at a c…
Top tips from our expert panel
…My Aged Care. We also recommend newly diagnosed people: Visit their GP for a chronic disease management plan, and Mental Health plan if they need emot…
Aducanumab (Aduhelm)
…imer’s will be required; combination therapy is common in many other diseases such as cancer, heart failure and Crohn’s disease Meanwhile, people with…
Parkinson’s disease and related dementias
…is no definitive medical test (blood test or scan) to diagnose Parkinson’s. It is diagnosed by identifying a range of symptoms and features. Symptoms a…
Intergenerational playgroups: Benefits for people with dementia
…he impact of a group of 4-year-olds visiting an aged care facility. The second series shows older people living alone at home spending time with a grou…
Copyright and Disclaimer
…l make every effort to ensure the availability and integrity of resources, but cannot guarantee that these will always be available, and/or free of any…
It’s time to plan for the future
…can’t provide care, for example if you become ill or injured, call Carer Gateway on 1800 422 737 24 hours a day, 7 days a week. Carer Gateway recommen…
Services for people with dementia from CALD communities
…d a series of videos and comic strips co-produced with CALD communities to increase awareness of dementia in these communities. My Aged Care provide so…
Dementia resource and services for Indigenous Australians
…with planning for an end-of-life journey that is inclusive of individual preferences, values and beliefs, and their cultural heritage. Dementia Traini…
Time to plan for now!
…re Plan. Read our recent news article How your GP and practice nurse can help with information about Chronic Disease Management Plans and Mental Health…
New research to help people access dementia-friendly eye tests
…uring the eye test. This new research aims to address these issues, and the research team are seeking people living with dementia and family carers to…
Webinar: Navigating the system, finding supports after diagnosis
…ut dementia. My Dementia Companion. Become a dementia friend. Often people diagnosed with dementia have to learn about dementia with their GPs. Drawing…
Natural disasters and people living with dementia
…h dementia saying they “knew how to be a carer” and they knew basically “how to manage in a disaster” (most had experienced flood before) but they felt…
Hearing Awareness Week: Time to get your hearing checked!
…e of the most common long-term conditions associated with ageing. Yet hearing loss is often under-diagnosed and under-treated. Most people don’t realis…
Rare Disease Day: Frontotemporal Dementia
…entia Australia Advisory Committee (DAAC), a national committee made up of people living with dementia. It provides strategic advice to Dementia Austra…
Showcasing the Museum of Love and the Celebrate Ageing Program
…l – to assist services become more LGBTI inclusive through an understanding of LGBTI cultural safety and the influence of staff values and beliefs on s…
How your GP and practice nurse can help
…ity, type 2 diabetes, mid-life high blood pressure, smoking and heavy alcohol use. If you need additional support at home, GPs and Practice Nurses can…
Keeping active and social while raising funds and awareness
…e, yellow and green) and competed in a range of events including freestyle, butterfly, breaststroke, backstroke, dog paddle, dolphin diving and pool wa…
Medication Review: Watch out for Anticholinergics
…considerations Keep an up-to-date list of your medications as this may be needed in the case of an emergency, if you go away on holidays, or if you nee…
Reducing the risk of vascular dementia
…ase. Vascular dementia encompasses several subtypes of dementia that result from by ongoing problems with circulation of the blood to and within the br…
Options to help keep you socially and mentally active online
…provide free, online peer-to-peer support groups and social groups for people with dementia via Facebook and Zoom (online video conferencing), for thei…
Options for keeping physically active at home
…ive for Life Online is a FREE 10-week healthy lifestyle program for adults aged 60 years and over. The program will help you learn how to make small, s…
New habits for the new year
…ly takes this long for a new behaviour to become a habit. Join a group or find a buddy. For example, if you goal is improving your diet, consider joini…
A tribute to Dr Hasegawa
…ing dementia specialist, passed away in November and I wanted to share his story on Forward with Dementia as he was a pioneer in dementia research and…
Children’s Books about Dementia
…nsider some of these well-loved children’s book titles as gifts for this festive season. The books were designed to create awareness and understanding…
Time Travelling with Technology
…d each other. A recent research study at the Western Sydney University, Time Travelling with Technology used a large television screen connected to Goo…
Surviving the festive season
…, downtime to rest and re-charge. For more information read 4.7 Practise self-care. Try to connect with people who may be even more socially isolated a…
I-HARP: Improving dementia outcomes through at-home care
…g, and person-environment-fit. I-HARP was successfully piloted for its feasibility and effectiveness. It is now being tested for its cost-effectiveness…
Showcasing the COPE program
…nts The COPE Australia Research Project ran from 2016-2019 and was led by Professor Lindy Clemson (University of Sydney) and Associate Professor Kate L…
Dementia Reframed
…ed is registered as a not-for-profit charity. Its core team are all experienced carers who volunteers their time and skills to enable other carers. Wh…
Social inclusion for people living with dementia
…ce for friendly help and advice. Some areas are now offering face-to-face lessons. Contact 1300 795 897 (9am-5am AEST)….
Get involved and help us improve Forward with Dementia
…Research Council. This project has been approved by the UNSW Human Research Ethics Committee. Project number HC210566 and HC 210308….
One step ahead: the iReadi program
…he iREADi approach is bio-psycho-social, anticipatory, rehabilitation-focused, and time-limited. It’s provided via a multi-disciplinary Management of D…
Downloadable resources for people with dementia and carers
…nds I have dementia card Download or print this card to let other people (for example the bus driver) know that you, or the person you support, has dem…
Emotional reactions to having dementia
…Dementia Australia also offers a 6-month telephone or online counselling program for people recently diagnosed with dementia. To access this service c…
Tam’s story: support and education in the Vietnamese community.
…My Aged Care. My parents-in-law go to a social group every week, and they also learn about different services available. They started using a respite…
Busting myths to combat stigma
…yths and stereotypes and guides people recently diagnosed to live positively with dementia. What is self-stigma When first diagnosed, some people feel…
Travel for people living with dementia
…nd determine ways to overcome them. Research tells us that maintaining an active lifestyle is not only good for our bodies, but also good for our minds…
Webinar: Rethinking support after dementia diagnosis
…-after-dementia-diagnosis-guide-setting-reaching-goals My Life, My Goals 00:41:09 Meredith Gresham: The main webpage for the COPE program is https://co…
Improving the dementia diagnosis experience
…nicate information, show compassion, convey hope and ensure timely follow-up. This website provides a healthcare professionals portal with a range of t…
Getting back into life and routine after COVID lockdown
…hen keep them going. For example, if you arranged for home-delivery groceries and you like this arrangement, keep it going (particularly if it frees yo…
Webinar: Rethinking the dementia diagnosis conversation
…view the webinar, please visit our YouTube Channel. You can also watch a 2-minute video on Communicating a Diagnosis of Dementia by Prof Brodaty….
Celebrating carers
…ore information and resources. We would also like carers to get involved in our research. These opportunities will be promoted soon via our website and…
Launch of Forward with Dementia Australia
…planned and developed by leading researchers from UNSW Sydney, the University of Sydney and University of Wollongong in collaboration with colleagues f…
Hello! Socially reconnecting after diagnosis
…ble, and I now enjoy the company of the new circle of friends that I have made along the way. In particular, my success in this journey would not have…
Bobby’s story: adjusting, accepting, and succeeding
…mportant to her, and her new GP offered to arrange a chronic disease management plan. Bobby is impressed with the level of knowledge among allied healt…
Tools and promotional resources for your clinic
…ation, convey hope and ensure follow-up. Patient Information Resource Provide patients with written information about their diagnosis and plans for fol…
Forward with dementia home page
…gnosis. You’ll find up-to-date information from clinicians and researchers, practical suggestions and stories from people living with dementia and care…
Glossary
…bility for services, for example CHSP, Commonwealth Home Support Programme Rehabilitation Rehabilitation is an individualised approach used by rehabili…
Post-diagnostic support and dementia care planning
…there is also a Consumer Companion Guide to support this document. A comprehensive dementia care plan should be developed with input from the person wi…
Telling someone they have dementia
…de a written summary. Be compassionate. Validate feelings and reassure. Convey hope. Suggest treatments including allied health, lifestyle modification…
5.13 Plan for emergencies
…after a natural disaster. Have a plan for different types of emergencies. Visit the Carer Ready Guide and download the guide in either the eBook format…
5.12 Sort out important documents
…e electronic nowadays, ensure that you have the passwords securely retained, otherwise this can lead to all sorts of frustrations! Get important docume…
5.11 Plan your legal affairs and money
…e. Be aware that if a ‘do-it-yourself’ will is made and later challenged, it is harder to justify that the person with dementia had capacity when makin…
5.10 Plan for future lifestyle, health and medical care
…responsible or a decision-maker. This person is a substitute decision maker for you about accommodation (eg if you need to move to residential care), h…
5.9 Ensure plans for the future are in place
…y important to have an up-to-date will, and someone appointed to make decisions about financial, legal, medical and care arrangements on your behalf if…
5.8 Getting services – Local organisations and councils
…us trips. Local councils offer a wide array of other services from clean-up services and help accessing aged care services, to men’s sheds and carer re…
5.7 Getting services – National Disability Insurance Scheme
…quire support with the co-ordination of their services, a support co-ordinator can be appointed. Terri was diagnosed with dementia at age 56. She had t…
5.6 Getting services – My Aged Care
…he home to conduct a face-to-face assessment. You might need to wait a few months to get an assessment. The assessors usually speak with carers as well…
5.5 Types of Services
…wance is subject to an income test (no assets test). The Australian Senior magazine provides a summary of current financial support, eligibility and th…
5.3 Putting your life plan in to action
…oor, she felt a sense of freedom. It was like a weight was lifted from me, but it wasn’t long before the worry took over. ‘Is Mario OK? Will he know wh…
5.2 Make a life plan for this year
…my friends regularly. Re-do our wills. Use the My life plan worksheet. Write 2-5 goals or things that are important to you in life. Identify barriers…
5.1 Plan for now to live well
…step. Some people feel unsure about what they should or can do after someone they love receives a diagnosis of dementia. Writing a life plan for this y…
Stories
…Learn from the experience of others……
News
…Latest news from Forward With Dementia……
Aducanumab: Is the new drug for Alzheimer’s disease a cure?
…ed on an intermediate outcome. That is reduction of the amyloid protein build-up/plaque in the brain (visible on specialised PET Scans) even though the…
Coming to terms with dementia
…People with dementia can understand and process their feelings…
Coming to terms with dementia
…Carers can understand and process their feelings…
Anne’s story: sharing the diagnosis and a love of dogs!
…e better, they are great company, their love is unconditional, and they have a sense of when to be relaxed! Social connections can help you cope bett…
Sharing Mum’s dementia diagnosis
…ng involved and relished company of all ages. We felt it was important to try to maintain as much contact as we could with her friends. We were lucky t…
Cheryl’s story: our dementia diagnosis experience
…as very, very caring and compassionate. He wasn’t talking to me. He was talking to Kevin. I know that’s what you would expect a doctor to do, but we’ve…
Cheryl’s story: services and support experience
…ort worker for Kevin who comes for 4 hours every Tuesday and Thursday afternoon. He’s very obliging and helpful and he and Kevin get along so well. I’m…
Michael’s story: a positive approach to living alone with dementia
…w many ideas they had in common. They both agreed that the most important idea was to talk on the phone every other day. Michael found these ideas to b…
Kerrie’s story: becoming the organiser to help with Maeve’s dementia
…bout the diagnosis, they offered to pick Maeve up each Tuesday, as she could no longer drive. This gave Kerrie an afternoon to do her own thing. At fir…
Phil’s story: from dismal diagnosis to dementia advocate
…Dementia Australia. They offered an eight-week course, which covered many practical aspects of living with dementia. It included more information about…
Phil Hazel’s story: decision about driving
…engraved tags on his neck-chain that detailed his condition and contact information. The people were friendly and helpful. They contacted his family an…
Rosa and Arnaldo’s story: travelling after a dementia diagnosis
…ormation about overcoming barriers and achieving your goals: 1.4 Get trustworthy, up-to-date information 1.6 Break down myths and stereotypes 5.2 Put y…
The joys and challenges of caring across the sea
…t more about care in the community. There was a delightful day care centre, where they offered social contact, plus opportunity for simple spa like tre…
Emira’s story: support from family and the Turkish community
…getting support and help-at-home services: 1.7 Learn from others leading meaningful lives 1.9 Plan to get support 2.13 Tell others how you want to be…
Betty’s story: help to stay independent at home
…getting support and help-at-home services in 3.12 Dementia makes it harder to manage at home and 5.3 Plan to use services. If you are a carer supporti…
Jean’s story: managing emotions after a dementia diagnosis
…ohn went through lots of tests and investigations. Eventually they diagnosed younger onset dementia. We got home that day, after the diagnosis, and Joh…
Colin’s story: education, social support and self-care for carers
…ead more about support networks for carers and looking after yourself: 1.7 Learn from others leading meaningful lives 2.4 Plan to prevent depression 4….
Brian’s story: diagnosis and giving up driving
…re were changes which I knew I needed to make right there and then. We got back to my car, as Vicky’s small Swift was at home. I decided, if I had deme…
Carol’s story: when caring for the carer is important
…sychologist continues to offer support to Carol as she grapples with the grief associated with losing the person she loves, their shared time, and Geof…
Heather’s story: moving forward without confrontation
…xperience from her mother-in-law’s perspective. When her mother-in-law became agitated, and convinced that things were missing, Heather would take the…
About us
…rodegenerative Disease Research (JPND), a global research initiative aimed at tackling the challenge of neurodegenerative diseases. JPND aims to increa…
4.7 Practise self-care
…ety of reasons. Consider new social groups, especially those that will provide a supportive atmosphere. Support groups are a great way to find people w…
4.6 Build your emotional resilience
…advisor, consultant or co-researcher. Learn more at the NHMRC. Ask your doctor. Volunteer through Step Up for Dementia Research. Browse the list of res…
4.5 Look after your own health
…to have good days and not-so-good days, it is also a warning you need to pause and look after yourself. The good news is that burn out can, to a large…
4.4 Get plenty of rest
…caffeine drinks from mid-afternoon. Consider trying non-caffeinated teas or decaffeinated coffee. Avoid use of computers or other sources of blue ligh…
4.3 Eat well
…for at least two alcohol-free days each week. Consider trying non-or low-alcoholic beverages or substituting with juices like cranberry juice. Again,…
4.2 Types of exercise
…k on them both. The good news is research has shown that even very old and frail people will improve quickly with regular practice. Falls prevention…
4.1 Live well to care well
…ralian physical activity guidelines recommend that adults 65 years or over should do at least 30 minutes of moderate intensity physical activity on mos…
3.17 Use services to support living at home
…advertised in the local newspaper, through letterbox drops, and online such as Airtasker. Government services Your person may be eligible for subsid…
3.16 Assistive technologies at home
…tems. In some instances, commercial providers may offer a service to try products before you buy. Assess the product. Think through the strengths and w…
3.15 Create a dementia-friendly environment
…ortably bright for the 20-year-old grandchildren. Consider using ‘stick on’ battery operated lights in the pantry or wardrobe and using night lights to…
3.14 Dealing with symptoms at home
…ry happy. They found the community offered by the village a great support. Particularly now that neither drives, the village bus to the shops and outin…
3.13 Use therapies to help people maintain independence
…nd friends to improve two-way communication. There is growing research on the benefits of speech therapy to improve the communication of people with de…
3.12 Dealing with symptoms when out and about
…e giving voice activated commands. For example, on iphone, the verbal command “Hey Siri, navigate to my parked car/shop/particular address” will show d…
3.11 Transport alternatives
…ory: Taxi subsidy scheme Community Transport Community transport can take you by car or small bus to medical appointments, social activities, exercise,…
3.10 Supporting someone to stop driving
…. This booklet gives step-by-step exercises to help support the decision of when to give up driving. The booklet is also available in other languages o…
3.9 Dealing with driving
…ments usually have an off-road component, where skills like vision and reaction time, are assessed and if these are considered sufficient, an on-road p…
3.8 Helping without taking over
…hings out of habit). For example: Ron was getting slower at getting ready in the morning. Sue suggested he grow a beard to avoid shaving “You had a bea…
3.7 Helping people with dementia to stay on task
…than a younger eye? A 75-year-old requires approximately twice the amount of light as a 45-year-old to have the same quality of vision. Ensure that th…
3.6 Managing anxiety about memory and thinking difficulties
…s called ‘shadowing’), becoming upset or increasing confusion. Strategies that reduce anxiety for people with dementia: A calm environment. In dementia…
3.5 Sensory and perceptual changes
…erprets information that comes from the senses. For example, your person’s eyesight might be fine (or corrected with glasses) but their brain may have…
3.4 Strategies to help with memory and thinking difficulties
…(We all do this from time-to-time!) This can be very stressful, wearing and sometimes expensive for a carer to chase up or replace misplaced items. Hav…
3.3 Cognitive therapies and rehabilitation
…ay consist of developing new ways of doing daily tasks. For the example of cooking a hot meal, the therapist may practise improving attention using com…
3.1 Dealing with memory and thinking difficulties
…tivation in Dementia – A Guide for Carers recently developed by researchers at the University of Sydney. Print the My life plan worksheet and go throug…
2.13 Tell others how you want to be supported
…neighbour had previously offered assistance. Gerda asked about coming over to play cards with Andre. He was happy to oblige, which gave Gerda time for…
2.12 Be assertive with doctors and other professionals
…of dementia may not be up-to-date on management of dementia, particularly around newer approaches of using a rehabilitative approach. Some doctors stil…
2.11 Managing how others treat you and the person you support
…alling, while others he knew less well stuck with him and his partner Michelle. Sometimes friends are anxious about dementia and how to ‘act’ around pe…
2.10 Sharing the diagnosis with employers
…, as well as carers’ and compassionate leave. There are also federal anti-discrimination laws that protect carers against discrimination based on carin…
2.9 Sharing the diagnosis with professionals
…ed, like arranging blood tests or x-rays. You could ask for a longer appointment or arrange to have you or an advocate accompany the person to appointm…
2.8 Sharing the diagnosis with family and friends
…ere and how to share the news is also helpful. Ismena felt most comfortable inviting friends over and telling them in her own home. Heinrich asked his…
2.7 Reactions of family and friends to the diagnosis
…ome family and friends become really upset at the news. Sometimes this is felt as unhelpful because they don’t want sympathy or pity, while others migh…
2.6 The person with dementia won’t talk about their diagnosis
…assist you and your well-being. Visit AgingCare for further reading and an online forum. View a short video about lack of awareness people with dement…
2.5 Talking about the dementia diagnosis
…Open and honest sharing can help you express your feelings and support each other…
2.4 Plan to prevent depression
…care services, in- or out-of-home respite services, reablement (rehabilitation) services, local government services e.g. transport, visiting libraries…
2.3 When feelings threaten to overwhelm you
…me type of personal shortcoming, it is an actual health condition that should, and can be treated. For help with depression and/or anxiety: Ring Dement…
2.2 Working through feelings is a positive step
…feelings. Counselling is offered by private services (you need to pay for these) or can be arranged through Dementia Australia. Write about your feelin…
2.1 Strong emotions with a dementia diagnosis
…erience. Situations that complicate feelings There are situations that will complicate feelings. If the person is younger, diagnosis can be a more of a…
1.11 Your children’s risk of dementia
…Dementia Around about 30-40% of people with fronto-temporal dementia will have a family history of this type of dementia. In a small number of cases,…
1.10 Plan for now and the future
…e home after a crisis. A common scenario is a person has a fall, leading to a visit to hospital, after which doctors and family feel it is not safe for…
1.9 Plan to get support
…p, but don’t know how to offer or what sort of support they could offer. Ask for help before you think you really need it. It is not admitting defeat;…
1.8 The progression of dementia
…before the age of 65 may pass away 10 to 20 years earlier than their usual life expectancy because of their dementia. People who develop dementia over…
1.7 Learn from others leading meaningful lives
…tia. DAI runs online peer-to-peer support groups, as well as hosting virtual cafes and educational webinars series for members around the world. Member…
1.6 Break down myths and stereotypes
…mentia have control, are comfortable, content, even happy. The common stereotype of people with dementia is they are victims suffering from a brain dis…
News & Stories
For healthcare professionals
…s to improve communication of the dementia diagnosis and post-diagnostic support. Explore stories and news…
1.5 Finding hope
…ment. participating in research and becoming dementia advocates. Whether it is a conscious decision or a gradual process, finding hope in the face of d…
1.4 Get trustworthy, up-to-date information
…o Dementia, The Dementia Compass, and Later in the Dementia Journey by the Horizon Health Network in New Brunswick, Canada. Dementia Australia has many…
1.3 Ask the doctor for information about dementia
…nose dementia (e.g. neuro-psychological tests, brain scans, blood tests). This may help you better understand why the changes you’ve noticed are happen…
1.2 Understand the types of dementia
…ntia. There are three sub-types of fronto-temporal dementia, each with a different pattern of symptoms. Semantic dementia is a subtype where the person…
For carers
…For carers The sections below contain information, tools and helpful strategies used by carers of people with dementia Explore stories and news…
1.1 Information about the diagnosis will help you move forward
…d. This, combined with up-to-date research, will help you choose your own path forward. Supporters, or carers of people with dementia found the followi…
5.8 Organise important documents
…e electronic nowadays, ensure that you have the passwords securely retained, otherwise this can lead to all sorts of frustrations! Get important docume…
5.7 Financial planning
…ation Service (FIS) is a free service that can help you make informed financial decisions and understand the financial implications of your aged care c…
5.6 Your will
…urchase, but you need to complete this correctly for it to be valid. It is important to think about this as soon as you can. If your dementia is too ad…
5.5 Plan for when you can’t make decisions
…to make healthcare and accommodation decisions on your behalf. Some states, such as New South Wales, have another form, called the Enduring Guardianshi…
5.4 Talk to your family about your future wishes
…ttps://youtu.be/GCKnoQgt6-c Discuss what you want if you are no longer able to make decisions, and for when you pass away. Contact Relationships Austra…
5.3 Plan to use services
…Your GP will provide day-to-day medical management for your health and make referrals for subsidised therapies with the practice nurse and/or allied h…
5.2 Put your life plan into action
…ralian Clinical Practice Guidelines to ensure you are aware of current evidence based recommendations for post-diagnostic care. Read the page 2.10 Tell…
5.1 Make a plan for this year
…to make them realistic. Example goals or things that are important: Go to Queensland to visit my sister. Finish re-building the back shed. Keep fit en…
4.9 Join a group to be more socially active
…sports), groups which do community work and groups representing specific cultures. Your local council usually has a list of local groups, look on their…
4.8 Be socially active
…lso tend to do better on tests of memory and thinking. People with dementia who are more socially active might also do better on memory tests. People w…
4.7 Be mentally active
…isual puzzles like a find-a-word or mazes, logic puzzles like sudoku) Try online programs like Neuronation, BrainHQ, Happy Neuron Socialise and talk to…
4.6 Build emotional resilience
…lf-confidence. Being self-compassionate means that you’re not undermining your own self-confidence. Practise spirituality For some people spiritualit…
4.5 Attend to other health issues
…ssues. Have regular check-ups and follow the advice of your health professional(s). If you are over 75 years make sure you are getting your annual 75+…
4.4 Rest well
…tes to wind down. Have a comfortable mattress and pillow(s). Consider thermo-regulated bedding that keeps you at the right temperature. Don’t drink rig…
4.3 Eat and drink well
…, food can be enjoyment, comfort, and a way to express yourself or your culture. Changing your shopping habits can help change your diet – for instance…
4.2 Exercise to boost your physical health
…k on them both. The good news is research has shown that even very old and frail people will improve quickly with regular practice. Falls prevention…
4.1 Your physical health affects your brain health
…etter quality of life. Research consistently shows that people with dementia who exercise regularly are more likely to maintain their cognition, abilit…
3.15 Services which support you at home
…advertised in the local newspaper, through letterbox drops, and online. For more information on help at home services, read the page 5.3 Plan to use s…
3.14 Occupational therapy and home modifications
…e assessments and make recommendations for modifications. Commonwealth Home Support Program and Home Care Packages can include home modifications. For…
3.13 Strategies from others to deal with difficulties at home
…ach day (e.g. jeans and t-shirt). Or match up seven ‘outfits’ and wear the same combinations each day of the week. Declutter your wardrobe. Throw out o…
3.12 Dementia makes it harder to manage at home
…aused by dementia can be compounded by having less physical strength and mobility. People with dementia and/or their families sometimes worry about the…
3.11 Speech and occupational therapy
…y and friends so that two-way communication is more effective. There is growing research on the benefits of speech therapy on improving the communicati…
3.10 Dementia friendly groups
…and working to make the community a more inclusive and welcoming place. Some people with dementia prefer to attend dementia friendly group or activity…
3.9 Strategies from others for when you are out and about
…g. up to six people). One-to-one works better for some people. If you lose track part way through, ask the other person to repeat themselves. If you’re…
3.8 Dementia makes activities outside home harder
…ges will help you to overcome difficulties you might experience when out and about: 3.9 Strategies from others for when you are out and about 3.10 Deme…
3.7 Transport options for people with dementia
…aken from your package. Community Transport Community transport will take you either by car or small bus to medical appointments, social meetings, exe…
3.6 Strategies from others who stopped driving
…le, go to one place that offers many services, so you only need to take one trip. If you use a taxi, try and use the same taxi driver. Ask the taxi dri…
3.5 Driving when you have dementia
…They usually have an off-road component, where they might check your vision and reaction time, and an on-road practical test. Fitness to Drive assessm…
3.4 Therapies to help memory and thinking
…oved for people with mild-to-moderate Alzheimer’s disease. They work by decreasing breakdown of a certain chemical messenger in the brain called acetyl…
3.3 Memory and thinking strategies
…their carers and can be downloaded free online. Dementia Australia have shared these videos about people living with dementia on the Living Well with…
3.2 Memory, thinking and perception difficulties
…he bottom of the page to download or order a hardcopy). Talking Sense is a comprehensive book about sensory and perceptual changes that may occur in de…
3.1 Managing symptoms to achieve what’s most important
…ich has examples to help guide you to complete your own. Learn about strategies, therapies and services Information and strategies on this website may…
2.13 Manage how you do and don’t want to be treated
…o drive, so if you could offer me a lift when we go out, I’d really appreciate it.” Tell others how you don’t want to be supported Some people with dem…
2.12 Manage stigma from others
…t activity that better accommodated your needs. For example, someone might be appointed to help you keep score for golf, or your group might decide to…
2.11 Tell your employer
…staff with dementia and offer different positions that suit your skills and keep you working. Some employers are less supportive or are not able to ma…
2.10 Tell other health professionals
…of dementia may not be up-to-date on management of dementia, particularly using a rehabilitation approach. Some doctors still believe that beyond medic…
2.9 Telling friends and family
…Start by telling the people you feel closest to…
2.8 Share your diagnosis, your way
…w others treat you). For example, “I’m no longer able to drive, so if you could offer me a lift when we go out, I’d really appreciate it.” Some people…
2.7 Family and friends’ reactions
…ome family and friends become really upset at the news. Sometimes, people with dementia find this unhelpful because they don’t want sympathy or pity, w…
2.6 Help for depression and anxiety
…liance International peer-to-peer support group Talk to your GP about how you are feeling. Your GP can help you develop a mental health plan with subsi…
2.5 Practice positive self-talk
…, “I keep the garden weed-free”. Write down three things you do that have meaning or purpose and put them on the fridge as a reminder. Being a burden m…
2.4 How you feel about yourself
…. Call 1800 100 500. The free counsellors at Dementia Australia will listen and help you make sense about your feelings about dementia. Talk to your do…
2.3 Support to adjust to diagnosis
…as well as group and one-on-one sessions and can support you to obtain other supports and services. There is no central contact point for the Dementia…
2.2 The idea of having dementia
…ings, the feelings can become less intense and you can feel supported by the person you’re sharing with. Some people prefer to work through worries and…
2.1 Emotional reactions to having dementia
…Managing your feelings is a key step in moving forward with dementia…
1.9 Your family’s risk of dementia
…Dementia Around about 30-40% of people with fronto-temporal dementia will have a family history of this type of dementia. In a small number of cases,…
1.8 Progression of dementia
…breathing. They usually pass away because of medical complications or an infection such as pneumonia. As dementia progresses, there is help available….
1.7 Learn from others with dementia
…tia. DAI runs online peer-to-peer support groups, as well as hosts virtual cafes and educational webinars series for members around the world. Membersh…
1.6 Bust dementia myths
…dependent and requiring compassion and care. Many people with dementia do not meet this stereotype. While they do have a brain disease, and may have p…
1.5 Find hope
…ht not talk about the day-to-day or social parts of living with dementia. They might not tell you about non-medication strategies and supports that can…
1.4 Learn from dementia experts
…o Dementia, The Dementia Compass, and Later in the Dementia Journey by the Horizon Health Network in New Brunswick, Canada. Dementia Australia has many…
1.3 What to ask your doctor
…(e.g. neuropsychological tests, brain scans, blood tests). Ask the doctor to highlight your strengths and weaknesses and the symptoms they think are si…
1.2 Types of dementia
…ementia Australia. Fronto-temporal dementia Fronto-temporal dementia is a less common type of dementia. People with fronto-temporal dementia have damag…
1.1 Diagnosis is the first step in moving forward
…dementia combined with up-to-date research, will help you choose your own path forward with dementia. People with dementia found the following actions…