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Introducing the PPA Guide

Introducing the PPA Guide

…ide The PPA Guide is a 42-page comprehensive and practical guide. It provides: an overview of the different variants of PPA, information for families a…

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An ‘exercise snack’?

An ‘exercise snack’?

…participated in this four-week study. “Between 81 and 97 per cent of our participants stuck to their routines over the four weeks and 82 per cent also…

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Influenza and dementia

Influenza and dementia

…ding severe flu in middle-age may protect future brain health. In the study, people who had been hospitalized for flu, with or without pneumonia, were…

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April Falls Prevention

April Falls Prevention

…ltiple medications. Wear comfortable, firm-fitting, flat shoes with fastenings and rubber soles that grip Hazard proof your home – removing trip hazard…

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Advance Care Planning week

Advance Care Planning week

…r injured, as well as end-of-life care. It also helps to ensure that a person you’ve identified, that you know and trust, is most likely to become your…

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Epilepsy and dementia

Epilepsy and dementia

…ving with familial, early-onset Alzheimer’s disease (under 65 years) a comparatively rare form of Alzheimer’s making up only 1% of all cases, are much…

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Getting organised at home

Getting organised at home

…me 3.15 Create a dementia-friendly environment 3.17 Use services to support living at home Colin’s story: education, social support and self-care for c…

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LGBTIQ+ and dementia

LGBTIQ+ and dementia

…aining Australia offer a free 3-hour, eLearning Course Caring for LGBTI people with dementia and is suitable for people working in a wide range of care…

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Medication update: Lecanemab

Medication update: Lecanemab

…been reported in the top-ranked journal, Science. Researchers suspect the antibody weakened blood vessels in the brain as it attacked the amyloid plaq…

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Nutrition and dementia

Nutrition and dementia

…rent Australian Dementia Guidelines recommend that Souvenaid not be used for people with moderate or severe dementia. Read more about this Souvenaid on…

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Carers Week 2022

Carers Week 2022

…rward with Dementia also offers downloadable resources to help carers and people with dementia, including a list of Possible questions for your doctor….

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Timely Diagnosis Project

Timely Diagnosis Project

…n primary care. The team comprises researchers from seven Australian universities who will work alongside people living with dementia, carers, general…

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Older Adult Mental Health Week

Older Adult Mental Health Week

…as well as group and one-on-one sessions and can support you to obtain other supports and services. There is no central contact point for the Dementia…

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Women’s Health Week

Women’s Health Week

…over 75 years, can have free comprehensive health assessments with their GP and practice nurse. Depending on the outcome of these assessments, your GP…

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Stroke and dementia

Stroke and dementia

…you have high blood pressure, type-2 diabetes, high cholesterol or an irregular heartbeat (atrial fibrillation), see your GP for ways to manage these…

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Dental health

Dental health

…ion also suggest: A three-sided toothbrush when brushing, known as the Surround Three-Sided Toothbrush or the Collis Curve. An electric toothbrush if i…

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Dementia Together Pathways

Dementia Together Pathways

…have dementia. Go to Post-diagnostic support and dementia care planning. Go to Tools and promotional resources for your clinic. Go to Downloadable reso…

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Diabetes and dementia

Diabetes and dementia

…Medicare and incur no out-of-pocket expenses. Health assessments help determine your personal risk of diabetes and/or dementia. Depending on the outcom

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Alcohol and dementia

Alcohol and dementia

…They can vary from person-to-person but generally include: Impaired ability to learn things Personality changes Problems with memory Difficulty with pr…

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Music and dementia

Music and dementia

…te in an international research study about home-based music and reading for people living with dementia and their carers via Homeside. For programs vi…

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Dementia and driving

Dementia and driving

…They usually have an off-road component, where they might check your vision and reaction time, and an on-road practical test. Fitness to Drive assessm…

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Top tips from our expert panel

Top tips from our expert panel

…My Aged Care. We also recommend newly diagnosed people: Visit their GP for a chronic disease management plan, and Mental Health plan if they need emot…

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Aducanumab (Aduhelm)

Aducanumab (Aduhelm)

…imer’s will be required; combination therapy is common in many other diseases such as cancer, heart failure and Crohn’s disease Meanwhile, people with…

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Copyright and Disclaimer

…l make every effort to ensure the availability and integrity of resources, but cannot guarantee that these will always be available, and/or free of any…

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Time to plan for now!

Time to plan for now!

…re Plan. Read our recent news article How your GP and practice nurse can help with information about Chronic Disease Management Plans and Mental Health…

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New habits for the new year

New habits for the new year

…ly takes this long for a new behaviour to become a habit. Join a group or find a buddy. For example, if you goal is improving your diet, consider joini…

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A tribute to Dr Hasegawa

A tribute to Dr Hasegawa

…ing dementia specialist, passed away in November and I wanted to share his story on Forward with Dementia as he was a pioneer in dementia research and

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Time Travelling with Technology

Time Travelling with Technology

…d each other. A recent research study at the Western Sydney University, Time Travelling with Technology used a large television screen connected to Goo…

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Surviving the festive season

Surviving the festive season

…, downtime to rest and re-charge. For more information read 4.7 Practise self-care. Try to connect with people who may be even more socially isolated a…

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Showcasing the COPE program

Showcasing the COPE program

…nts The COPE Australia Research Project ran from 2016-2019 and was led by Professor Lindy Clemson (University of Sydney) and Associate Professor Kate L…

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Dementia Reframed

Dementia Reframed

…ed is registered as a not-for-profit charity. Its core team are all experienced carers who volunteers their time and skills to enable other carers. ​Wh…

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Busting myths to combat stigma

Busting myths to combat stigma

…yths and stereotypes and guides people recently diagnosed to live positively with dementia. What is self-stigma When first diagnosed, some people feel…

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Celebrating carers

Celebrating carers

…ore information and resources. We would also like carers to get involved in our research. These opportunities will be promoted soon via our website and

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Forward with dementia home page

Forward with dementia home page

…gnosis. You’ll find up-to-date information from clinicians and researchers, practical suggestions and stories from people living with dementia and care…

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Glossary

Glossary

…bility for services, for example CHSP, Commonwealth Home Support Programme Rehabilitation Rehabilitation is an individualised approach used by rehabili…

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5.13 Plan for emergencies

5.13 Plan for emergencies

…after a natural disaster. Have a plan for different types of emergencies. Visit the Carer Ready Guide and download the guide in either the eBook format…

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5.5 Types of Services

5.5 Types of Services

…wance is subject to an income test (no assets test). The Australian Senior magazine provides a summary of current financial support, eligibility and th…

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5.1 Plan for now to live well

5.1 Plan for now to live well

…step. Some people feel unsure about what they should or can do after someone they love receives a diagnosis of dementia. Writing a life plan for this y…

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About us

…rodegenerative Disease Research (JPND), a global research initiative aimed at tackling the challenge of neurodegenerative diseases. JPND aims to increa…

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4.7 Practise self-care

4.7 Practise self-care

…ety of reasons. Consider new social groups, especially those that will provide a supportive atmosphere. Support groups are a great way to find people w…

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4.5 Look after your own health

4.5 Look after your own health

…to have good days and not-so-good days, it is also a warning you need to pause and look after yourself. The good news is that burn out can, to a large…

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4.4 Get plenty of rest

4.4 Get plenty of rest

…caffeine drinks from mid-afternoon. Consider trying non-caffeinated teas or decaffeinated coffee. Avoid use of computers or other sources of blue ligh…

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4.3 Eat well

4.3 Eat well

for at least two alcohol-free days each week. Consider trying non-or low-alcoholic beverages or substituting with juices like cranberry juice. Again,…

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4.2 Types of exercise

4.2 Types of exercise

…k on them both. The good news is research has shown that even very old and frail people will improve quickly with regular practice.   Falls prevention…

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4.1 Live well to care well

4.1 Live well to care well

…ralian physical activity guidelines recommend that adults 65 years or over should do at least 30 minutes of moderate intensity physical activity on mos…

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3.11 Transport alternatives

3.11 Transport alternatives

…ory: Taxi subsidy scheme Community Transport Community transport can take you by car or small bus to medical appointments, social activities, exercise,…

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3.9 Dealing with driving

3.9 Dealing with driving

…ments usually have an off-road component, where skills like vision and reaction time, are assessed and if these are considered sufficient, an on-road p…

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3.8 Helping without taking over

3.8 Helping without taking over

…hings out of habit). For example: Ron was getting slower at getting ready in the morning. Sue suggested he grow a beard to avoid shaving “You had a bea…

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2.4 Plan to prevent depression

2.4 Plan to prevent depression

…care services, in- or out-of-home respite services, reablement (rehabilitation) services, local government services e.g. transport, visiting libraries…

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1.9 Plan to get support

1.9 Plan to get support

…p, but don’t know how to offer or what sort of support they could offer. Ask for help before you think you really need it. It is not admitting defeat;…

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1.8 The progression of dementia

1.8 The progression of dementia

…before the age of 65 may pass away 10 to 20 years earlier than their usual life expectancy because of their dementia. People who develop dementia over…

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1.5 Finding hope

1.5 Finding hope

…ment. participating in research and becoming dementia advocates. Whether it is a conscious decision or a gradual process, finding hope in the face of d…

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For carers

For carers

For carers The sections below contain information, tools and helpful strategies used by carers of people with dementia Explore stories and news…

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5.7 Financial planning

5.7 Financial planning

…ation Service (FIS) is a free service that can help you make informed financial decisions and understand the financial implications of your aged care c…

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5.6 Your will

5.6 Your will

…urchase, but you need to complete this correctly for it to be valid. It is important to think about this as soon as you can. If your dementia is too ad…

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5.3 Plan to use services

5.3 Plan to use services

…Your GP will provide day-to-day medical management for your health and make referrals for subsidised therapies with the practice nurse and/or allied h…

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5.1 Make a plan for this year

5.1 Make a plan for this year

…to make them realistic. Example goals or things that are important: Go to Queensland to visit my sister. Finish re-building the back shed. Keep fit en…

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4.8 Be socially active

4.8 Be socially active

…lso tend to do better on tests of memory and thinking. People with dementia who are more socially active might also do better on memory tests. People w…

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4.7 Be mentally active

4.7 Be mentally active

…isual puzzles like a find-a-word or mazes, logic puzzles like sudoku) Try online programs like Neuronation, BrainHQ, Happy Neuron Socialise and talk to…

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4.6 Build emotional resilience

4.6 Build emotional resilience

…lf-confidence. Being self-compassionate means that you’re not undermining your own self-confidence.   Practise spirituality For some people spiritualit…

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4.4 Rest well

4.4 Rest well

…tes to wind down. Have a comfortable mattress and pillow(s). Consider thermo-regulated bedding that keeps you at the right temperature. Don’t drink rig…

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4.3 Eat and drink well

4.3 Eat and drink well

…, food can be enjoyment, comfort, and a way to express yourself or your culture. Changing your shopping habits can help change your diet – for instance…

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3.10 Dementia friendly groups

3.10 Dementia friendly groups

and working to make the community a more inclusive and welcoming place. Some people with dementia prefer to attend dementia friendly group or activity…

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2.12 Manage stigma from others

2.12 Manage stigma from others

…t activity that better accommodated your needs. For example, someone might be appointed to help you keep score for golf, or your group might decide to…

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2.11 Tell your employer

2.11 Tell your employer

…staff with dementia and offer different positions that suit your skills and keep you working. Some employers are less supportive or are not able to ma…

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2.5 Practice positive self-talk

2.5 Practice positive self-talk

…, “I keep the garden weed-free”. Write down three things you do that have meaning or purpose and put them on the fridge as a reminder. Being a burden m…

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2.4 How you feel about yourself

2.4 How you feel about yourself

…. Call 1800 100 500. The free counsellors at Dementia Australia will listen and help you make sense about your feelings about dementia. Talk to your do…

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2.2 The idea of having dementia

2.2 The idea of having dementia

…ings, the feelings can become less intense and you can feel supported by the person you’re sharing with. Some people prefer to work through worries and

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1.8 Progression of dementia

1.8 Progression of dementia

…breathing. They usually pass away because of medical complications or an infection such as pneumonia. As dementia progresses, there is help available….

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1.6 Bust dementia myths

1.6 Bust dementia myths

…dependent and requiring compassion and care. Many people with dementia do not meet this stereotype. While they do have a brain disease, and may have p…

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1.5 Find hope

1.5 Find hope

…ht not talk about the day-to-day or social parts of living with dementia. They might not tell you about non-medication strategies and supports that can…

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1.4 Learn from dementia experts

1.4 Learn from dementia experts

…o Dementia, The Dementia Compass, and Later in the Dementia Journey by the Horizon Health Network in New Brunswick, Canada. Dementia Australia has many…

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1.3 What to ask your doctor

1.3 What to ask your doctor

…(e.g. neuropsychological tests, brain scans, blood tests). Ask the doctor to highlight your strengths and weaknesses and the symptoms they think are si…

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1.2 Types of dementia

1.2 Types of dementia

…ementia Australia. Fronto-temporal dementia Fronto-temporal dementia is a less common type of dementia. People with fronto-temporal dementia have damag…

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