Different types of dementia produce different changes and patterns of change in memory, thinking, behaviour or abilities, and these changes can be uneven and unpredictable. Just as you adjust to one change, another may appear.
Petra said, “My biggest lesson after the dementia diagnosis is that changes are often unexpected, you are not well prepared, and no-one gives you any hints about what might be in store.”
This section of the website describes changes you may experience (see 3.2 – 3.5). The rest of this section of the website discusses ways to manage the changes. It is important to note that everyone living with dementia, and those close to them experience changes differently. That said, there are some common changes that many people encounter over time. Being informed ahead of time can help you recognise what’s happening and support your loved one more confidently and calmly.
There is often negativity around dementia symptoms, and a common belief that “nothing can be done.” This isn’t true. Many people find it helpful to think about dementia in a similar way to other disabilities. After a stroke or with arthritis, people adjust so they can still care for themselves, get around, and live meaningful lives. Dementia also involves change and adaptation, not giving up!
While there is no single ‘roadmap’ for dementia, there are ‘signposts’ along the way. Regular check-ins with your GP or specialist, talking with other living with younger-onset dementia and families, using nurses, a range of allied health professionals and support organisations can help you anticipate changes, problem-solve early, and feel less alone as things shift.
Managing changes
This section of the Forward with Dementia website guides you through a broad range of changes you may experience and gives information, guidance and links on how to manage changes.
You can read through this section of the website or click on sections that are most relevant for you now.
Photo: Chris Lawton via Unsplash.
