Emira’s story: support from family and the Turkish community

Hello, my name is Emira. The last few years have been difficult, but every day I give thanks for my children and their help.

My husband’s health and activity had both dropped, and he was diagnosed last year with Alzheimer’s disease. I think we all thought something was wrong for a long time, but did not get a diagnosis. Since two years ago, he needs help doing most things like taking a shower, getting dressed and eating meals. Now he is home there is a lot of work to do and someone has to be with him all the time.

My daughter helps on weekends, when she’s not working. My son has a carer allowance from the government which means he can stay with us and help care for my husband. I am thankful for this, because I’m growing old myself. I get very tired and could not do all the caring jobs alone.

I know we can apply for other services through My Aged Care, like house cleaning and lawn-mowing. My son suggested we get a service which makes the house safer for my husband, putting hand-rails in the bathroom and that sort of thing.

The carer support group run by our local multicultural organisation is important for me. I go once a month and talk about things. I learn about what services are available and good ideas to better care for my husband. Everybody is happy talking to each other. We talk about our worries but there is laughing and joking too.

I also go to a Turkish social group, twice each week. It feels good to get out of the house and be with Turkish women. I’m lucky because my children and my husband encourage me to go and take a break. It’s also comforting to know that if something happens, and we need more help to stay living at home, I can contact My Aged Care.